I've been down physically for the past two weeks now, almost anyways... While my stomach feels somewhat better now, I'm having a bad neck flare for the past week or so, forcing me to lay down as much as possible to keep the worst headaches at bay. I've been outside my apartment twice since last Saturday if I remember it right! And despite doing what I can to keep the headache and neck pain at bay, I've been forced to take my rapid acting painkiller most days this week, night to Monday it ran through me like water through a sieve and I was kept awake all night because of the pain. And people wonder why I don't work! Ha! There ya go! Try to have a job when you don't know if and when you get to sleep and not even be able to sit up without getting pain at the near suicidal level...
Everything is just shit at the moment. I just want to rip these past couple of weeks out of the calendar!
To top this week off, my favorite social app, Get Glue has gone from being a great place to be, to a dictatorship fascist app that has removed everything that made the app good! Most people are really fuming over the changes, myself included, and a lot of people will leave the app, probably myself included unless they agree to bring back the check in topics they removed!
To put it simple, it went from being very versatile to being like the tree channel! Or imagine a Facebook where you can't post anything else but what you watch. That's how Get Glue became this week- you went from being able to check in to anything between heaven and earth, to now being limited to TV shows, movies and sports, and who the fuck watch sports anyways? Along with the fact those new things are only adapted for American users which pretty much make us international users not feeling welcome!
Another new feature is that you can order stickers directly from the phone app. Now most people I know hasn't even ordered one sticker and most couldn't care less about them damn stickers! If there's one function I wouldn't miss on Get Glue, it would be the stickers!
But then of course, there are the sticker whores who only cares about stickers but those are very few in comparison with the amount of people wanting to be able to check in at any subject they feel like.
Past 7am, I haven't slept yet overnight and need to get up in a couple of hours... Thinking I might as well get up now, take a shower and watch TV until it's time to get up... And if I do watch TV, it's not likely I will check in at that show on Get Glue as I'm boycotting the new Get Glue (even though I restored to the old app on my phone), I don't support only being able to check into my TV shows I watch!
Saturday, February 9, 2013
Monday, February 4, 2013
A bad day to round off a bad week
This week hasn't been the best week of my life, it has probably been one of the worst...
Have been, and am feeling physically awful, started the week with a migraine and rounding it off with a severe neck flare that makes chopping my neck off sound like a nice option despite taking as much rapid acting today as I take long acting daily, meaning I've doubled my dose of painkillers and still in agony. Oh, and had IBS flare during the week, causing a lot of discomfort so I've barely been able to eat.
This week has mainly been spent resting and watching movies, and doing as much as I could cope with, today has been a very horizontal day due to my neck as I'm literally seeing stars when sitting or standing without neck support when flaring like this. I have a rigid neck collar but I can't stand wearing it because the material is very rough against my skin and it doesn't quite have the right shape for me, but yes, do need that kind of support... Soft collars do nothing for me. Should call my orthotist when I wake up because the situation is unbearable!
When pain is this bad, my long acting Oxycodone only works a little in the background and the rapid acting has effect for less than half of the time it's meant to be working, it just goes through me like water through a sieve, but at least takes the edge off the pain during that little time it is working.
Better top up the rapid again now and try some sleep so I wake up in time to make the phone calls I need to make in morning...
Sometimes living with EDS really sucks!
Have been, and am feeling physically awful, started the week with a migraine and rounding it off with a severe neck flare that makes chopping my neck off sound like a nice option despite taking as much rapid acting today as I take long acting daily, meaning I've doubled my dose of painkillers and still in agony. Oh, and had IBS flare during the week, causing a lot of discomfort so I've barely been able to eat.
This week has mainly been spent resting and watching movies, and doing as much as I could cope with, today has been a very horizontal day due to my neck as I'm literally seeing stars when sitting or standing without neck support when flaring like this. I have a rigid neck collar but I can't stand wearing it because the material is very rough against my skin and it doesn't quite have the right shape for me, but yes, do need that kind of support... Soft collars do nothing for me. Should call my orthotist when I wake up because the situation is unbearable!
When pain is this bad, my long acting Oxycodone only works a little in the background and the rapid acting has effect for less than half of the time it's meant to be working, it just goes through me like water through a sieve, but at least takes the edge off the pain during that little time it is working.
Better top up the rapid again now and try some sleep so I wake up in time to make the phone calls I need to make in morning...
Sometimes living with EDS really sucks!
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