Watched a video on YouTube yesterday evening, and that made me quite upset! Such a scandal that an organization is spreading misinformation about a condition! Yes, they got some of it right, but they missed the crucial part of mentioning that the condition can affect people differently. Or at least they didn't mention that part clearly enough. In the video they made it sound like people living with this condition can live normal lives and have a normal lifespan. Ask someone living with it and that person wouldn't agree!
Yes, some people are only affected mildly, but for many, living with a medical condition means a lot of hospital visits, taking medications for rest of their life and sometimes complicated surgeries only to live.
I will not mention names nor which condition(s) it is due to privacy reasons. See this as something general... Don't believe in everything you see on the internet, even if it's posted by an awareness and patient support organization.
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